Fanconi Anaemia Australia
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Who is Fanconi Anaemia Australia?
Fanconi Anaemia Australia provides a variety of support services to families suffering Fanconi Anaemia, in addition to providing broad-based education doctors, carers, families and the general public. Fanconi Anaemia Australia was first established in February 2006 by Alan Howard-Jones as an Incorporated Association (FA Australia Incorporated). Alan's wife Charisse (now deceased) was a sufferer of Fanconi Anaemia, and following their attendance at Camp Sunshine in Maine USA in 2005, Alan founded the organisation to provide support to Australian families and to assist in increasing public awareness of the disorder. The organisation was restructured in 2007 as a Public company called Fanconi Anaemia Australia Ltd
Understanding Aplastic Anaemia
Aplastic anaemia is the failure of the bone marrow (aplasia) to produce one or more of the three blood cell types (red blood cells, white blood cells, or platelets). Anaemia typically refers to decreased hemoglobin in red blood cells but, when used in this context, refers to any new blood cells. Bone marrow biopsy results reveal a lower number of blood cells than normal
Aplastic anaemia is usually the first adverse event in patients with FA, occurring at a median age of around 8-10 years and reaching a plateau by the 20s.
(2008 Fanconi Anemia Research Fund, Fanconi Anemia: Guidelines for Diagnosis & Management, USA)
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