Fanconi Anaemia Australia
welcome
Who is Fanconi Anaemia Australia?
Fanconi Anaemia Australia provides a variety of support services to families suffering Fanconi Anaemia, in addition to providing broad-based education doctors, carers, families and the general public. Fanconi Anaemia Australia was first established in February 2006 by Alan Howard-Jones as an Incorporated Association (FA Australia Incorporated). Alan's wife Charisse (now deceased) was a sufferer of Fanconi Anaemia, and following their attendance at Camp Sunshine in Maine USA in 2005, Alan founded the organisation to provide support to Australian families and to assist in increasing public awareness of the disorder. The organisation was restructured in 2007 as a Public company called Fanconi Anaemia Australia Ltd
Publications
Literature…
Publications available for mail order or download are as follows;
Fanconi Anemia – Guidelines of Diagnosis & Management, 2008
Fanconi Anemia Research Fund, Inc (USA) | Download or request paperback copy
Fanconi Anemia – Standards of Clinical Care, 2003
Fanconi Anemia Research Fund, Inc (USA) | Download or request paperback copy (*While stocks last)
Fanconi Anemia – Handbook for families & their physicians, 2000
Fanconi Anemia Research Fund, Inc (USA) | Download
FA information sheet
Fanconi Anaemia Australia Ltd | Download or request a paper copy
FA Courier (latest edition)
Fanconi Anemia Research Fund, Inc (USA) | Download
*While stocks last = This item is not longer in print and availability is while stocks last
To order hardcopy publications via mail, please contact us via email at info@fanconi.org.au or telephone 1300 350 091.
Most Recent Comments