Fanconi Anaemia Australia
welcome
Who is Fanconi Anaemia Australia?
Fanconi Anaemia Australia provides a variety of support services to families suffering Fanconi Anaemia, in addition to providing broad-based education doctors, carers, families and the general public. Fanconi Anaemia Australia was first established in February 2006 by Alan Howard-Jones as an Incorporated Association (FA Australia Incorporated). Alan's wife Charisse (now deceased) was a sufferer of Fanconi Anaemia, and following their attendance at Camp Sunshine in Maine USA in 2005, Alan founded the organisation to provide support to Australian families and to assist in increasing public awareness of the disorder. The organisation was restructured in 2007 as a Public company called Fanconi Anaemia Australia Ltd
Contact Us
Alan Howard-Jones
Executive Director
Telephone: 1300 350 091 (within Australia)
International callers: +61 8 8127 9602
Facsimile: (08) 8312 0270
Postal address:
PO Box 495
Salisbury SA 5108
Australia
Email: info@fanconi.org.au
There are a number of internet groups and forums which are specific to Fanconi Anameia issues, people & events. The following is a list of useful links to help you get involved in the FA community
FA Australia Yahoo! Group – A group for Australian parents & adult patients suffering with Fanconi Anaemia
Moderated by Fanconi Anaemia Australia
Join this group
FA Adults Yahoo! Group – A group for adults suffering with Fanconi Anaemia (International)
Moderated by the Fanconi Anemia Research Fund, inc
Join this group
Fanconi Yahoo! Group – A group for parents & adult patients suffering with Fanconi Anaemia (international)
Moderated by the Fanconi Anemia Research Fund, Inc
Join this group
Facebook Groups – various groups to join for members of Facebook.
* Fanconi Anaemia in Australia
* Fanconi Anemia Research
Login to Facebook
Most Recent Comments