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Who is Fanconi Anaemia Australia?

Fanconi Anaemia Australia provides a variety of support services to families suffering Fanconi Anaemia, in addition to providing broad-based education doctors, carers, families and the general public. Fanconi Anaemia Australia was first established in February 2006 by Alan Howard-Jones as an Incorporated Association (FA Australia Incorporated). Alan's wife Charisse (now deceased) was a sufferer of Fanconi Anaemia, and following their attendance at Camp Sunshine in Maine USA in 2005, Alan founded the organisation to provide support to Australian families and to assist in increasing public awareness of the disorder. The organisation was restructured in 2007 as a Public company called Fanconi Anaemia Australia Ltd

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“Fanconi Anaemia Australia provides a variety of support
services to families suffering Fanconi Anaemia, in addition
to providing broad-based education to treating doctors, carers, families
and the general public”

A Little About Fanconi Anaemia…

Fanconi anaemia is a rare inherited (genetic) disease characterised by a variety of physical defects (congenital abnormalities), progressive bone marrow failure, chromosomal fragility and cancer susceptibility.

Characteristic congenital abnormalities include:

1. hand and arm anomalies (misshapen, missing or extra thumbs or abnormalities of the radius)
2. skeletal anomalies of the hips, spine or ribs
3. skin discolouration (café au lait spots, hyperpigmentation)
4. small head or eyes
5. low birth weight and subsequent short staure more…

We need your help to donate blood to the Australian Red Cross Blood Service…

There is a national shortage of blood, platelets and plasma in Australia, and although there is much publicity on this issue, it is never as noticable as when you are on the receiving end.

Therefore, Fanconi Anaemia Australia have established a Club Red Group at the Australian Red Cross Blood Service for which friends and family of Charisse, and other FA patients can donate blood for this important cause. more…

Latest News…

  • New Fanconi Anaemia website, including blogs and RSS.. check it out
  • Promotional video from 2009 Fanconi camp produced. Check it out at www.fanconicamp.org.au

Further Information…

This site contains much information about FA. If you have any questions or require support please don’t hesitate to contact us at any time.